5 Things I Wish People Understood About Profound Autism

5 Things I Wish People Understood About Profound Autism

1. Communication Isn't Just Words

Many individuals with profound autism are nonverbal, but that doesn't mean they don't have a voice. Communication comes in many forms—sign language, behaviors, or AAC devices—and it's up to us to learn their language. As an Autism Mom Coach in Dubai, I help parents understand and embrace alternative communication methods to support their child's unique needs.

2. Behaviors Can't Just Be Taught Away

I wish they could, but for many people with profound autism and intellectual disability, understanding cause and effect isn't always possible. Behaviors like running into the street, swallowing dangerous objects, smashing items, or self-harm aren't easily corrected through traditional behavior strategies. As an Autism Coach in Dubai, I work with families to implement safety-first approaches that go beyond typical interventions.

3. Safety is a Daily Concern

From wandering, self-harm, and pica to aggression, profound autism often comes with serious safety challenges. Caregivers are constantly on alert, making sure their loved ones are safe in a world that isn't built for their needs. Autism in UAE presents unique challenges in ensuring accessibility, but with the right advocacy and resources, we can create safer environments for autistic individuals.

4. Caregiving is Relentless

Parents and caregivers often sacrifice careers, relationships, and their own well-being to provide 24/7 care, knowing that their child may never live independently. Through Lumina Paths Coaching, I help parents develop coping strategies and support networks to navigate these challenges while prioritizing their own well-being.

5. The Future is Uncertain

For many families, the question of “Who will take care of my child when I'm gone?” is a constant source of anxiety. Support systems and resources for profoundly autistic children and adults are often severely lacking. As an Autism Mom Coach in Dubai, I work with families to create long-term plans and explore sustainable care solutions to ensure a stable future for their loved ones.

Understanding profound autism requires empathy, education, and ongoing advocacy. At Lumina Paths Coaching, we are dedicated to supporting families in Dubai and the UAE by providing guidance, strategies, and community connections to navigate this lifelong journey.

Have any questions?

For any questions about our Coaching Program for Mothers of Autistic Teenage Boys, contact us.